Did you know that John (used-to-be-Cougar) Mellencamp was born with Spina Bifida? I didn’t up until a few weeks ago. For some reason I was googling “famous people with SpinaBifida” and his name popped up. Now, looking at him he looks completely normal and seems to have had a ‘normal, active life’ so I’m assuming… Continue reading Little Pink Houses…
Let me start by saying thank you! Jessica and I have been blown away and completely overwhelmed by the show of support for Eliza. We are amazed at the number of people that offer their prayers, offer their assistance, give advice, and say just the right things to keep us in a positive frame of mind during this… Continue reading Don’t stop believing….
Apparently Eliza James likes West Side Story… I read years ago about the benefits of playing Classical music to your baby in utero and decided last week that we would listen to some Mozart and Debussey and Rossini… This week the station is airing a ‘Tribute to Leonard Bernstein’ so they are playing a ton… Continue reading When you’re a Jet, you’re a Jet
ˈspīnə ˈbifidə/ noun a congenital defect of the spine in which part of the spinal cord and its meninges are exposed through a gap in the backbone. It often causes paralysis of the lower limbs, and sometimes mental handicap. “This can’t be happening to us”…”Not our baby” They say the first step in dealing with… Continue reading “Baby Got (a hole in her) Back”…5 Steps
Dear Eliza, I decided to write you this letter so that you will know (and I will never forget) just exactly what our life was like while we waited for your arrival. You have been in your mother’s womb for about 27 weeks now, but I have only known that you were there for a… Continue reading A letter to my unborn child…..Dear Eliza